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2011 VHLFA Annual Meeting

MD Anderson Cancer Center has partnered with the VHL Family Alliance to host the 2011 VHL national meeting on June 18th at MD Anderson's Cancer Prevention Building. The meeting is open to patients, family members and health care providers involved in the treatment of VHL. Experts from the National Institutes of Health, MD Anderson Cancer Center and from around the country will discuss recent advances in VHL therapy. Attendees are encouraged to arrive the night before so that they can meet the speakers in an informal setting in the evening. Von Hippel Lindau disease (VHL) is an inherited mutation of the VHL gene, which causes tumors to form in areas of the body that contain large numbers of blood vessels. VHL affects one in every 32,000 children born in the United States. A mutation of the VHL gene can affect several organs of the body, and can be expressed differently in every patient and every family. The most common manifestations of VHL consist of cysts and tumors of the retina, brain, spinal cord, kidney, pancreas and inner ear. It is crucial that patients and families living with VHL have their care coordinated by a team of doctors and counselors with expertise in the various aspects of their care. Proper genetic testing, appropriate screening and appropriately timed therapies are all important aspects of any treatment plan for VHL. Eric Jonasch, M.D., associate professor, Department of Genitourinary Medical Oncology, will be discussing new clinical trials for this disease. For more information or to register for the event, visit-
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